Path to Caring for PBA – Pseudobulbar Affect

If you have here’s tending to an individual with a neurological condition, such as Alzheimer’s disease, you may have observed instances of laughter or tears. The individual experiences these emotional outbursts without understanding the cause and lacks control over them. This phenomenon is known as pseudobulbar affect (PBA).

Pseudobulbar affect can manifest alongside conditions such as Alzheimer’s disease, amyotrophic late Alzheimer’s (ALS), multiple sclerosis (MS), Parkinson’s disease, stroke, Parkinson’s disease or Traumatic Brain Injury (TBI). Although distinct from depression, recent research suggests that PBA is often misdiagnosed as such. PBA is a neurological condition resulting from changes in the brain that disrupt nerve communication. Understanding PBA may help ensure appropriate care for your loved one.

Understanding the origin of their emotions

The key to delivering effective care and support is comprehending the root of those occurrences. The individual may display emotional responses at unexpected moments. You can manage these situations by being empathetic to the underlying cause. They are not expressing these emotions towards anyone intentionally. The episodes are not a result of an immediate event but a consequence of a nervous system disorder over which they have no control.

Provide comfort and support

These unexpected emotional episodes might distress your loved one. In such situations, offering comfort and reassurance can be beneficial. If preferred, guide them to a peaceful setting to recover. Encourage them to practice breathing techniques or engage in physical movement to alleviate the intensity of their emotions.

Identify potential triggers

Observing and noting potential patterns preceding emotional outbursts may help you identify triggers. Your role as a caregiver is crucial in this process. By doing so, you can effectively anticipate and mitigate potential causes. Additionally, encouraging your loved one to track their episodes can assist in identifying triggers.

Educate others about the condition

Individuals experiencing PBA may feel embarrassed or misunderstood in public. Educating others about the condition could help alleviate these feelings and reduce the stigma associated with PBA. While it may not be possible to inform everyone, educating those regularly in contact with the individual can foster understanding and support.

Explore available treatment options

Discuss potential treatments with your loved one’s healthcare providers. While in the past, there weren’t tailored medical treatments, the approval of Nuedexta by the Food and Drug Administration (FDA) provided a viable option. Nuedexta, a medication specifically designed to treat PBA, can aid in reducing the frequency and intensity of emotional episodes. Other treatment options, such as counseling and therapy, may also be beneficial and should be discussed with healthcare providers.

Seek out a support network

Numerous organizations, both online and in physical communities, offer support for caregivers.

Participation in a caregiver support group can provide a sense of understanding and belonging. Depending on your loved one’s specific condition, consider contacting relevant organizations and exploring support groups or peer mentoring programs recommended by their doctor.

Does your loved one require better home care? Get in touch with our intake team to ensure a smooth journey of compassion and support!